Tuesday, August 31, 2010

Crohn's drug cocktails all around...



Today's altered book page focuses on the ridiculous amount of drug cocktails and their awesome side effects. I have been on no less than 23 different prescriptions this year alone. 23. That number alone makes me even sicker. I have sat through numerous doctor visits and drug consultations because of the side effects. I have been hospitalized twice because of a drug that gave me pancreatitis. The latest drug has given me diabetes, could give me kidney and liver failure, has made my face swell to a pillsbury dough boy shape, has given me a mysterious red dots, and has made my hair go running from my head. Any infection I get could lead to sepsis. Really I can't help but think WTF?

Monday, August 30, 2010

Stuck in hell

I have to say...if I were to sum up this year, my 40th year on this earth, it would be in one word, HELL. I have had some bad years.. the year Nora died is at the top but this year... I have been sick since January. I have had more tests, more doctors appointments, more hospital visits, blood tests than ever in my life. I have come to the conclusion that this year sucks. I keep looking for an out but I am not finding one. I have come to accept that I have Crohn's. I accept that I have a disease but what I don't accept is the lack of control of the disease. I am not understanding why the doctors cannot get a handle on this damn disease. And to add insult to injury, the medications they give me are inspiring other diseases to come to fruition. Its like a damn disease party in my body. Why not? Crohn's is all alone, so its decided to invite Diabetes, Mysterious Rash and Pancreatitis. Now they are just having the time of their life while ruining mine.

Something has got to change, right?

To celebrate the party of hell in my body, I decided to dedicate an altered book to Crohn's and its many facets. First pic posted is the disease party, second pic is the first pic digitally altered to represent how my life with crohn's feels.... pretty messed up.